کاوشی در تجربه زیسته کودکان مبتلا به سرطان درباره بیماری و پیامدهایش : یک مطالعه کیفی

نویسندگان
افروز افشاری
مریم همایون پور
نرگس سراج پور
زهرا طاهری
دانشگاه الزهرا
10.52547/rph.13.1.125
چکیده
سرطان در کودکان، عامل استرس­ زای غیر­قابل پیش­ بینی محسوب می­ شود که بر زندگی کودک تاثیرات روانشناختی بسیاری برجای می­گذارد. درک دیدگاه کودکان از شرایطی که در آن قرار گرفته­اند به ارائه بهتر خدمات و رفع موانعی که از سوی کودک در پذیرش درمان اثرگذار است، نقش دارد. هدف از پژوهش حاضر بررسی و درک دیدگاه کودکان مبتلا به سرطان در مورد بیماری آنها بود. پژوهش حاضر از نوع کیفی و به روش تحلیل محتوا صورت گرفت و در آن تعداد 20 کودک 4-12 ساله بستری و مبتلا به انواع مختلف سرطان به روش نمونه­ گیری هدفمند انتخاب شدند و نمونه­ گیری تا اشباع داده ها ادامه یافت. دیدگاه کودکان در خصوص بیماری سرطان و پیامدهای آن، با استفاده از تحلیل محتوای نقاشی­ها و مصاحبه­ های نیمه ساختار یافته ضبط شده، مورد بررسی قرار گرفت. تجزیه و تحلیل داده­ ها به طور مستمر و همزمان با جمع آوری اطلاعات و به شیوه­ ی مقایسه ای، با استفاده از نرم افزارMAXQDA صورت گرفت. حدود 1020 کد از پیاده سازی مصاحبه­ های ضبط شده و نقاشی­ های ترسیم شده­ ی کودکان به صورت کدگذاری باز مشخص شد. داده­ های کدگذاری شده در نهایت در 5 مقوله کلی خلاصه شدند که عبارت بودند از: 1. اشتغال ذهنی نسبت به محل درمان، 2. اشتغال ذهنی با مشکلات جسمانی ناشی از بیماری و درد، 3. رشد پس آسیبی مثبت، 4. پیامدهای منفی ناشی از بیماری، 5. پیامدهای خانوادگی ناشی از ابتلا به بیماری، 6. نگاه کودک به روند بیماری.
کلیدواژه‌ها
تحلیل محتوا
روش کیفی
سرطان
کودکان

عنوان مقاله English

Exploring Lived Experience of Children with Cancer about thire disease and its consequences: A qualitative study

نویسندگان English

Afrooz Afshari
Maryam Homayoun poor
Narges Seraj poor
Zahra Taheri
Alzahra University
چکیده English

Cancer is an unpredictable stressor in children and has a psychological impact on their lives. Understanding the children's view about their condition, provide better services and eliminating barriers that effects on accepting treatment by the child. The aim of present study was to explore and understand the perspectives of children with cancer about their disease. The present study was a qualitative investigation that conducted by content analysis method in which 20 hospitalized children aged 4-12 years suffering from different type of cancer were selected through purposive sampling and sampling continued until data saturation. To explore the perspectives of children about cancer and its consequences, content analysis of the drawings (by psychoanalytic approach) and the recorded semi-structured interviews were conducted. Data analysis was conducted continuously and simultaneously with data collection and with a comparative method using MAXQDA software. Approximately 1020 codes were identified by the implementation of recorded interviews and drawings of children by open coding. The data coded were finally summarized in five categories: 1. Concerns relative to the place of treatment; 2. Concern with physical problems due to illness and pain; 3. post-traumatic growth, 4. negative problems due to illness, 5. Family consequences of the disease, and 6. The child's view of the process of the disease.

کلیدواژه‌ها English

cancer
children
Content analysis
Qualitative Method


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